Emily's Story

The Allo Podcast · 2023-10-24

01:21:28

The onset of a strange itchiness results in the discovery that pregnant Emily Rusch is experiencing cholestasis. A lack of adequate medical attention results in the death of Emily’s baby in the NICU. Emily shares about her experience as a bereaved and newly sensitized mother as she navigates alloimmunization in her subsequent pregnancies.

Show Themes:

Pregnancy related itching and cholestasis Losing a child Discerning and pursuing medical malpractice litigationFinding ways of maintaining control in difficult situations Advocacy in the NICU and post-discharge for HDFN babiesAnxiety of motherhood and the burden of being your baby’s best advocate

References:

Cholestasis HDFN Newborn calculators and tools

Research for this episode provided by Bethany Weathersby and Molly Sherwood of the Allo Hope Foundation. Find more information at https://allohopefoundation.org

The Allo Podcast is produced and edited by Media Club.

The Allo Podcast

The Allo Podcast brings you into the complex world of maternal red blood cell alloimmunization and Hemolytic Disease of the Fetus and Newborn (HDFN.) We share real life patient experiences, valuable insights for providers and care teams, and easy to understand monitoring and treatment information. We empower you to advocate for the best possible care, and we have a great time doing it.

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